Posts from the ‘Uncategorized’ Category

TS Awareness – Post #4

So there’s a page I ran across on Facebook that listed Ten Things About Turner Syndrome.  I thought I’d use that list to help share some information about Turner Syndrome that others might find interesting or useful to know.

4.  The average height for someone with Turner Syndrome, who has not taken growth hormones, is 4’8. Most people with TS are less than 5’0. Besides for height, people with Turner Syndrome often have no other outward signs

4’8″ is exactly my height and I’m in about the 95th percentile for girls with TS.  And this is without growth hormones.  I think my pediatrician wanted to refer me to an endocrinologist because my height was falling off the bottom of the growth chart for girls without TS.  The only other sign that might have been an alert was that I was 12 years old and had not started my period (which was fine with me).  Short stature is likely the biggest commonality among girls with TS.

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TS Awareness – Post #2

So there’s a page I ran across on Facebook that listed Ten Things About Turner Syndrome.  I thought I’d use that list to help share some information about Turner Syndrome that others might find interesting or useful to know.

2.  Sex chromosomes are usually expressed as ‘XX’ for female and ”XY’ for male. For most people with Turner Syndrome, their chromosomes are expressed as ‘XO’. Since secondary sex characteristics don’t develop, people with Turner Syndrome are usually female by default.

To rephrase that a bit, development essentially defaults to female due to the “XO” scenario.  TS is a female diagnosis though.  I haven’t done research but I’m sure there’s a male equivalent or something similar.

John Wilson – revisited

I wanted to reshare this to try again to find family.

via Lost and Found – John Wilson

Boost Your Blogging Confidence and Write that Post

Need a blogging boost of confidence?

“that song”

So, Tim Smelser is one of those preachers who seems to have a knack for speaking on a topic that just really resonates with you.  Last night was no different.

(It’s not online yet… remind me and I’ll keep checking to post a link to listen.)

The general gist to start off with was songs that just really mean something to us.  He told how remembered one song meant a lot to his parents who were missionaries over seas.  It was one they sang after their Thanksgiving dinner where a number of American missionaries had gathered.  (Sorry, I don’t remember the details now.  I didn’t write it down!)

It automatically made me think of Amazing Grace.  This song will always hold a very special place in my heart.  We always sang the first and last verse of it and said a prayer before we started every show at the Dinner Theatre.  A few of us “theatre kids” sang it last November at Stephen Elrod’s funeral for this very reason.  I’ve now lost three other of my good theatre friends, only adding to how special this song is to me.

But Tim called our attention to the end of a verse that we probably kind of gloss over usually.

When they had sung a hymn, they went out to the Mount of Olives. – Mark 14:26

So there was at least one song that Jesus sang as His last.  One that his disciples probably never heard or sang again without remembering him.  That “one last song” probably meant a lot to Him, too.  So what was it?  Do we know?

Well, if you look at the traditions of Passover and the Psalms they sang, the last songs He/ they sang were probably Psalms 113 to 118.  (Click that link to read.) I’d especially encourage you to read Psalm 118.  It’s really kind of cool to think that that could have been the last song He heard and sang.  It ends with “give thanks to the Lord, for He is good, His love endures forever.”  It’s nice to know that He had some words of comfort and reminders of His Father’s love there at the end.

So, I’ll leave you to read and ponder that… and end with the words to Amazing Grace…

Amazing grace, how sweet the sound, that saved a wretch like me.  I once was lost, but now I’m found.  Was blind, but now I see.  When we’ve been there, ten thousand years, bright shining as the sun, we’ve no less days to sing God’s praise than when we’ve first begun.

“Hi, my name is Helen…”

And I’m a Type 2 diabetic.

Just like Paula Deen, evidently…

I was diagnosed about 6 or 8 years ago now.  I’m on medications and doing decently well, not as stellarly since I haven’t watched my diet and exercise as well.  But I’m no where near death or illness from what my doctor says… or doesn’t say!

My health problems (including diabetes and others) can probably be traced to a combination of genetics and lack of better habits.  The crux of the problem stems from the fact that I am 4’8″, which is specifically from my Turner’s Syndrome (TS).  (See my blog post “the girl who lived” under TS.)  Being so short makes is hard to lose weight and hard to maintain weight loss.  It also makes it easy to gain weight and to develop other problems that can come from that.

The diet I was instructed to follow, by an actual dietitian, is actually pretty easy and I caught on fairly fast.  (Now just to get back to sticking with it and throwing in some exercise?!!)  Her instructions to me were to only eat between 30 and 45 grams of carbs per meal and 15 and 20 per snack.  She even gave me a list of how some fruits and veggies count.  I even have a list from her of ones that DO NOT count!!  (They’re just so low, there’s no point trying to count them!)

The first key I picked up on is that it’s all about what you put together.  If you eat fries, don’t eat a bun or drink regular coke.  Well, don’t drink regular coke period.  I dropped all regular sodas like a hot cake after I heard how many carbs are in there!!  (I am NOT wasting my time/ carbs on that!)  I drink either diet sodas or water.  Sometimes I find tea sweetened with an artificial sweetener and I can go for that.

Let me give you a quick fill in on what the typical American consumes in one meal without even realizing.  (This is fast food, but I bet you do almost the same!)  The average person will go to a fast food restaurant and order a hamburger meal.  That bun is 33g of carbs.  The fries are 29g, and that’s a small order.  And don’t forget the drink at 66g  for only 20oz of regular Coke.  That’s 128g of carbs for one single meal.  Congrats… you just TRIPLED what you should have in one meal.

I highly recommend CalorieKing.com.  It’s SOO helpful if you’re trying to watch what you eat.  FYI, it also has information for restaurants, so be sure to check that out.  Another thing I’ve noticed, is that if you know you’re going to eat out,  many restaurants now have their nutrition information posted online.

As always, please feel free to leave a comment or question… I don’t mind at all and will try to find the answer for you!!

Lunchbox Review… chicken nuggets!!

I eat lunch out pretty much every day.  I know, not the best health-wise.  I don’t have much of an option.

1.  I MUST leave work for one hour for lunch.  No eating at desk!

2.  We don’t really have anywhere for me to “go away” to eat that’s on campus and not outside.

3.  I’m not going home, because I always regret it and never want to leave the house again.

4.  It’s just simpler on me.

There are several places close enough for me to eat and be back on time.  A lot of my decision on where to eat at lunch is based on whether or not I have another errand.

Today I needed to go pick up my prescriptions, which is another story, but nixed my usual place when I have that errand, which is another story as well.  I decided to try out Chik-fil-A’s (CFA) new GRILLED chicken nuggets!

Am I wrong, or has anyone ever offered such a thing?  I don’t recall and am thoroughly disappointed now that we, as a society, have been deprived of such a thing!

I ordered the 8-count meal.  The $5.18, or about, was not a bad price and is about what you expect to pay at CFA.  I picked at the fries as I drove to get gas and finished up the meal back on campus.  The fries were good, as always.  But MAN… the nuggets were REALLY VERY good!  I was impressed at the flavor they had.  The juiciness was also just right, as well as the size of the bites.

I heard about them from a friend who’s daughter has Celiac disease and can’t eat gluten.  (The new kids meal with the grilled nuggets is actually gluten free!)  I liked the idea because it means no breading and no carbs.  It really just made for a perfect lunch for me today!